The link between physical and mental health is well known, however there is limited data to evidence this as physical and mental health data are not routinely collected together. 

 

A series of focus groups involving members of the public, experts in mental health data collection and ethics committee members were involved in establishing the CMHDS. This was then successfully implemented in two physical health trials. 

 

In early 2023, we were awarded Greater Manchester Clinical Research Network (CRN) funding to culturally adapt the CMHDS. We engaged 23 participants from minoritised ethnic backgrounds through public focus groups to explore perceptions of the CMHDS and its inclusion of race and ethnicity data.    

 

Additionally, we consulted six experts in cultural sensitivity and mental health research to gather insights into best practices. Conclusions from this piece of work identified that formatting, wording and language and social and cultural factors were important aspects to adapt to be more culturally sensitive.    

 

The CMHDS is being carried forward in DATAMIND and will store participant data on mental health in the DATAMIND Trusted Research Environment for approved researchers to access.   

 

The DATAMIND SRAG Research Advisory Group were also also involved in finalising the Culturally Adapted CMHDS.